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Real People. Real Stories.

Real Connections.

The RNS Peer Forum

Hear from real people who are benefiting from the RNS® System and have volunteered to share their experiences.

Every person’s seizures are different and individual results will vary. *

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  • man
    Kim's Story
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    Kim's Story
    anemptytextlline
    My name is Kim. I live in a small town in New Hampshire. When you have epilepsy and you live in a small town, it...
  • woman smiling
    Christine's Story
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    Christine's Story
    anemptytextlline
    My name is Christine. I’m 54 years old and have always lived in Massachusetts. I’m married with five children and one granddaughter. When the...
  • Christina
    Chris's Story
    Read More
    Chris's Story
    anemptytextlline
    The first seizure that I can remember happened when I was about 8 years old. I didn’t understand what it meant, but suddenly...
  • couple smiling
    Susan and Paul's Story
    Read More
    Susan and Paul's Story
    anemptytextlline
    I’m Susan Hogue and I’m mom. My son is Paul and he’s had epilepsy for almost 30 years now.
  • woman smiling
    Kim's Story
    Read More
    Kim's Story
    anemptytextlline
    I was six months old when it was first realized something was wrong. I was running a fever and my mother took me to the...
  • woman
    Emily's Story
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    Emily's Story
    anemptytextlline
    My name is Emily. In 2006, I was in a car accident during my senior year in high school. After that, I started having ‘staring spells.’
  • man
    Danny's Story
    Read More
    Danny's Story
    anemptytextlline
    My name is Danny. I’m 47 years old and I’ve had epileptic seizures for most of my life starting when I was 12...
  • woman smiling
    Ouida's Story
    Read More
    Ouida's Story
    anemptytextlline
    I was 29 years old and had been living and working in China for about a year when I had my first generalized tonic-clonic seizure.
  • woman smiling
    Connie's Story
    Read More
    Connie's Story
    anemptytextlline
    My name is Connie. I’ve had epilepsy for about seven years now and I’ve had the RNS for about three months.
  • woman smiling
    Adison's Story
    Read More
    Adison's Story
    anemptytextlline
    My name is Adison. I’m 23 years old and live near Sacramento, California. I started having seizures when I was...
  • man
    John's Story
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    John's Story
    anemptytextlline
    I experienced my first seizure in August, 1991. I had just graduated from the University of Wisconsin with my bachelor’s degree and was headed down...
  • couple smiling
    Ian's Story
    Read More
    Ian's Story
    anemptytextlline
    My name is Ian Olsen, I am 27 years old and began having seizures at age 11.
  • two men smiling
    Tim's Story
    Read More
    Tim's Story
    anemptytextlline
    When my son, Gabe, was 4 years old, his mother and I got divorced. After that, Gabe lived with his mom, so he...
  • man smiling
    Will's Story
    Will's Story
    anemptytextlline
    My name’s Will and I was born in 1975. Growing up, my visual memory was not very good; I didn’t enjoy reading books...
  • couple with two kids
    Jason's Story
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    Jason's Story
    anemptytextlline
    My name is Jason. I am 35 years old and I live near Tampa, Florida with my wife and two children.
  • woman smiling
    Kathleen's Story
    Read More
    Kathleen's Story
    anemptytextlline
    My parents were the first ones to know about my condition, and I didn't say much to my family because I was kind of embarrassed.
  • woman smiling
    Tyler's Story
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    Tyler's Story
    anemptytextlline
    In the autumn of 2012, I suddenly started to stutter. I spoke with a lisp when I was a child, so at the...
  • man smiling
    Michael's Story
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    Michael's Story
    anemptytextlline
    My name is Michael, and I live in Texas. I have been living with epilepsy for more than 20 years. My epilepsy was...
  • family
    Helen and Marshall's Story
    Read More
    Helen and Marshall's Story
    anemptytextlline
    We first noticed Marshall was having incidents when he was about two years old and at age three, he was diagnosed with epilepsy....
  • woman smiling
    Tracey's Story
    Read More
    Tracey's Story
    anemptytextlline
    One summer they found a cavernous malformation and then they did surgery on that, and it was the scar tissue from that surgery that caused...
  • man
    Don's Story
    Read More
    Don's Story
    anemptytextlline
    My name is Don. I live in Chicago where I work as a designer at an engineering firm. I had my first grand mal...
  • woman smiling
    Chrissy’s story
    Read More
    Chrissy’s story
    anemptytextlline
    My name is Christine. I live just north of Denver, Colorado with my husband and two small children. I got married in 1998...
  • man
    Erick's Story
    Read More
    Erick's Story
    anemptytextlline
    I had my first seizure in March 2007, about a month before I turned 19 years old. I was attending a technical college at the...
  • woman
    Paula's Story
    Read More
    Paula's Story
    anemptytextlline
    My name is Paula. The first time I had a grand mal seizure, I was 19 years old.
  • man smiling
    Ricky's Story
    Read More
    Ricky's Story
    anemptytextlline
    My name is Ricky and I’ve had RNS System for about ten months. I used to suffer from a lot...
  • woman smiling
    Heather's Story
    Read More
    Heather's Story
    anemptytextlline
    My name is Heather. I am 30 years old and I live in North Carolina. I had my first seizure during my senior year...
  • woman smiling
    Luisa's Story
    Read More
    Luisa's Story
    anemptytextlline
    My name is Luisa Fields and I am 37 years old. I first started having seizures when I became pregnant with my first son...
  • woman smiling
    Courtney's Story
    Read More
    Courtney's Story
    anemptytextlline
    My name is Courtney Derr. When I was 23 years old, I started having partial complex epileptic seizures. When a seizure began, I would...
  • woman
    Janie's Story
    Read More
    Janie's Story
    anemptytextlline
    My name is Janie. I live in Georgia with my husband and two children. Epilepsy has limited my life in all sorts of ways.
  • man
    Carlo's Story
    Read More
    Carlo's Story
    anemptytextlline
    My name is Carlo I am 28, and I have had epilepsy for 28 years. My childhood was sprinkled with periods of activity and inactivity.
  • man smiling
    Josh's Story
    Read More
    Josh's Story
    anemptytextlline
    My name is Josh. I’m 41 years old. I’m a Texan – I grew up in Amarillo and then went to school at...
  • man smiling
    Drew's Story
    Read More
    Drew's Story
    anemptytextlline
    When I was twelve, a large schwannoma tumor was removed from the right frontal lobe of my brain. A few months after the...
  • woman smiling
    Kimberly's Story
    Read More
    Kimberly's Story
    anemptytextlline
    At 26, out of nowhere Kimberly Bari suddenly started having seizures and debilitating anxiety. Fate brought her to UCSF Medical Center where doctors have been...
  • couple interviewing
    Our Stories - Volume II
    Our Stories - Volume II
    anemptytextlline
    A collection of video stories from Connie, Ian, Luisa, Susan and Paul, Ariceli and Richard, and Brianna
  • woman smiling
    Carolyn's Story
    Read More
    Carolyn's Story
    anemptytextlline
    Hi my name is Carolyn and when I was 35 years old, I began to have grand mal seizures. I...
  • woman smiling
    Mollie's Story
    Read More
    Mollie's Story
    anemptytextlline
    My name is Mollie, I'm 24 and I live outside of Atlanta. I live in the same small town where I grew up. It’s the kind...
  • man smiling
    Richard's Story
    Read More
    Richard's Story
    anemptytextlline
    Hi, my name is Richard Lopez, I have epilepsy and I’ve had epilepsy since I was 13. I got the RNS System on June 11th,...
  • woman
    Erica's Story
    Read More
    Erica's Story
    anemptytextlline
    Hi, my name is Erica, and I had my RNS System placed in 2016. My struggle with epilepsy started about 9 years ago.
  • woman with bird
    Tammey's Story
    Read More
    Tammey's Story
    anemptytextlline
    Hello! My name is Tammey and I am a Registered Nurse Educator, wife, and mother. On October 07, 2007 at 4AM, my life as...
  • woman
    Nancy's Story
    Read More
    Nancy's Story
    anemptytextlline
    My name is Nancy. I live in Erie, Pennsylvania alongside Lake Erie. I worked in medicine for over 30 years....
  • woman smiling
    Kaeti's Story
    Read More
    Kaeti's Story
    anemptytextlline
    My name is Kaeti. I’m 29 and I live in Anacortes, on the coast of Washington State. I had my first seizure when...

*Talk with an epilepsy specialist to determine if the RNS System is right for you. RNS Ambassadors do not work for NeuroPace and are unpaid volunteers. They cannot give medical advice or offer any specific recommendations about treatments, doctors or hospitals. See important safety information.

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Are you taking this survey for yourself or a loved one?







1. How old are you?
1. How old is your loved one?
2. What type of epilepsy do you have?
2. What type of epilepsy does your loved one have?
3. Have you had any of these procedures?
3. Has your loved one had any of these procedures?
4. Do you still have seizures despite trying 2 medications?
4. Does your loved one still have seizures despite trying 2 medications?
5. Do you want to find an epilepsy center that offers the RNS System?
5. Does your loved one want to find an epilepsy center that offers the RNS System?

Let's see if the RNS System is available near you...

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Are you receiving care at any of these hospitals?
Optional
Is your loved one receiving care at any of these hospitals?

Optional
Who are you seeing for your epilepsy care?
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Who is your loved one seeing for epilepsy care?

It appears you may be a candidate for the RNS System!


If you would like to learn more about the RNS System or find a Comprehensive Epilepsy Center in your area, provide your contact info below, including your phone number, and a Nurse Educator will contact you.


If you would like to receive info on the RNS System via email only, provide your name, email, and zip code.






The RNS System is not currently FDA approved for patients under the age of 18. However, we are currently enrolling patients in the RESPONSE Clinical Study to evaluate the RNS System in teens ages 12 through 17. To learn more, click "Done".
 
It appears that you may not be an appropriate candidate for the RNS® System at this time. It is FDA approved for people 18+ years of age with focal epilepsy who are still having seizures despite trying two or more medications. 
It appears your loved one may not be an appropriate candidate for the RNS® System at this time. It is FDA approved for people 18+ years of age with focal epilepsy who are still having seizures despite trying two or more medications. 

The RNS System is not currently FDA approved for patients with generalized epilepsy. However, we will be enrolling patients in the NAUTILUS Clinical Study to evaluate the RNS System in patients with primary generalized epilepsy. To learn more visit  https://www.neuropace.com/providers/clinical-research/


Step 1 of 7

14%
    The RNS System is for individuals 18 and older who have focal epilepsy and have tried two or more medications without finding seizure control.
  • Based on your answers, your patient might benefit from the RNS System.

    Get your profile and a list of questions to ask your doctor.

  • Unfortunately it appears your patient is not an appropriate candidate for the RNS® System at this time.

  • The RNS® System is intended for patients who have undergone diagnostic testing that localized no more than 2 epileptogenic foci.

    If your patient has not undergone diagnostic testing, search here to find a comprehensive epilepsy center that can evaluate your patient, including determining if the RNS System is right for them.

  • If you are interested in learning more about the RNS® System, you can have an RNS® System professional contact you by filling out the form below:

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