Category

Written Stories

Adison’s Story

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My name is Adison. I’m 23 years old and live near Sacramento, California. I started having seizures when I was 11 years old. Since my first seizure was a grand mal, they put me on anti-seizure medications right away. The medicines didn’t always stop the seizures. Sometimes it seemed like...
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Courtney’s Story

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My name is Courtney Derr. When I was 23 years old, I started having partial complex epileptic seizures. When a seizure began, I would feel an aura. Then one side of my body would go numb and I would lose self-awareness. People who observed me having seizures told me that...
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Ian’s Story

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My name is Ian Olsen, I am 27 years old and began having seizures at age 11. The seizures occurred between 2 and 20 times every month which negatively affected my life in many ways, and I often felt disappointed thinking that I would be forced to live with seizures...
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Richard’s Story

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Hi, my name is Richard Lopez, I have epilepsy and I’ve had epilepsy since I was 13, which makes it 29 years. I got the RNS implanted on June 11th, 2015. I’ve been through what I call “the medication merry-go-round”. Everything they’d give me would work for a little bit...
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Paul’s Story

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I’m Susan Hogue and I’m mom. My son is Paul and he’s had epilepsy for almost 30 years now. The toughest thing about being a mom with a child who has epilepsy is not being able to assist in any way. You see your child go into a seizure and...
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Marshall’s Story

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We first noticed Marshall was having incidents when he was about two years old and at age three, he was diagnosed with epilepsy. He was put on medication that was keeping his seizures under control until he was about 12 when his seizures started to break through again. We started...
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Emily’s Story

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My name is Emily and when I was eight years old I started having pain behind my eye. My doctors thought there was something wrong with my optic nerve and gave me medicine which helped but every time they took me off the medications, it all came back. About a...
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Anthony’s Story

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My name is Bob and my son, Anthony, has epilepsy. Anthony started having seizures when he was seven years old. In fact, he almost died three times from seizure activity. He’s been on every medication that they have; toxic levels of them. Nothing’s worked. He’s had a total of eight...
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